Gia Grace

By Angela, mom of our Gia Grace - December 2020

To all our family and friends,

Our sweet Gia passed away on Christmas. There are no words to describe the pain we feel right now. Our lives have been forever changed by her love and her strength and by the outpouring of support from all of you.

Her life was cut short due to KIF1A Associated Neurological Disorder, and we vowed from the day of her diagnosis we wouldn’t stop fighting for her and all those affected by this awful disease. If you feel inclined, please consider making a donation in honor of Gia at to help find a much needed cure. We will continue to do everything we can to keep her legacy alive.

We love you Gia Grace, so much. Until we meet again, we will love you everyday and keep your memory alive.